Milas Miracle Foundation Inc.

THE MISSION OF MILA'S MIRACLE FOUNDATION IS TO FIND AND FUND PATHS TO A CURE FOR BATTEN AND OTHER LIFE-THREATENING NEUROLOGICAL DISORDERS. FAMILIES IN THIS COMMUNITY HAVE BEEN PIVOTAL IN RAISING THE NECESSARY FUNDS AND AWARENESS. TOGETHER, WITH OUR INCREDIBLE SCIENTISTS AND PARTNER ORGANIZATIONS, WE HOPE THAT OUR WORK WILL IMPROVE THE PROGNOSIS OF BATTEN DISEASE AND OTHER NEURODEGENERATIVE DISEASES. THROUGH OUR FUNDRAISING, WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS, OUR FOUNDATION'S WORK HAS FOCUSED ON FIVE PRIMARY PROGRAM INITIATIVES TO DATE: AN ANTISENSE OLIGONUCLEOTIDE (ASO) CLINICAL TRIAL; A CLN7 GENE THERAPY TRIAL; BASIC SCIENCE RESEARCH FOR BATTEN DISEASE; A BATTEN & NEURODEGENERATIVE DISEASE PROGRAM CLINIC; AND A PEDIATRIC CELL ATLAS OF BATTEN PATHOBIOLOGY AND THERAPEUTIC RESPONSE. ADDITIONALLY, WE ARE FOCUSED ON HELPING TO GROW THE NEW FIELD OF TRULY PERSONAL MEDICINES, WHICH MILA'S STORY HAS OPENED UP. OUR HOPE IS TO GO FROM "MILA TO MIL

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Financials

$661k
2022 Budget
93%Program Spend
6%Management Spend
1%Fundraising Spend
93%
6%
1%
Learn more at
www.stopbatten.org