Friedreichs Ataxia Research Alliance Fara

Programming Pro

Friedreich’s Ataxia Research Alliance (FARA) Mission Statement

The Friedreich’s Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to the pursuit of scientific research leading to treatments and a cure for Friedreich’s ataxia. Friedreich’s ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder.

FARA's Mission is to marshal and focus the resources and relationships needed to cure FA (Friedreich’s ataxia) by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.

Springfield, VA
EIN 52-2122720
medical research

FARA focuses on grant making for FA research and building collaborations with organizations dedicated to advancing treatments for FA. Due to the progressive nature of the disease and the promise of treatments in development, there is urgency to our efforts. Directing attention and resources to FA research and partnering with others that share this commitment, FARA believes it can help bring forward effective treatments and a cure for FA.

1 in 50,000
About one in 50,000 people in the United States have Friedreich's ataxia.


2018 Budget
97%Program Spend
2%Management Spend
2%Fundraising Spend